tag:blogger.com,1999:blog-4103802066277678586.post8931098381936482824..comments2011-09-21T21:08:15.735-07:00Comments on Fight for Life: UpdatesJulie Heppehttp://www.blogger.com/profile/07312287213683378638noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-4103802066277678586.post-29486725937858650932011-06-05T16:45:21.935-07:002011-06-05T16:45:21.935-07:00Hey Julie, been worried about you and praying for ...Hey Julie, been worried about you and praying for you. So glad you are doing better. the hearing for the FDA is June 28,29th. Survivors as well as those who are against keeping the drug are able to speak now. I will be speaking on behalf of myself, you and many others who have had the benefits or who may need the benefits of this drug. They are also organizing a peaceful protest the morning of the 27th at 7am outside the FDA building where the hearing is being held so if you have any friends in washington, I would love it if they would come walk for you and hold a pic of your beautiful face. They need to know we are real. they seem to think only the statistics that didn't do well on the drug are the only ones out there and as one writer said, "there are no survivors alive who have been on avastin to testify." thats not a perfect quote but very close....I am just wondering what rock he has been hiding under. there is another site that 2 husbands of women on avastin started that people can find out more about the protest etc. and that is fameds.org If anyone can make it to the protest, please sign up there and they will let you know what to do. this is really history making as the FDA hasn't ever done a hearing like this from what I have been told. If you want to write something, depending on how long they give me to speak, I would be happy to speak for both of us.....let me know!!!! God is good and this will all work out for good one way or another!!!!!Romans 8:28 Christi Turnagepicklesandpandashttps://www.blogger.com/profile/17301737215480529886noreply@blogger.com